Pole Position Raceway Las Vegas Helping Family In Need!

We had another amazing company help our family out.  This time it was by giving us a much needed family night!  Pole Position Raceway invited us to come and drive a few laps around their course.  The kiddos were able to do it twice!  It was so much fun!  I was able to race once, too.  It was so awesome!  It made me happy to be doing something exciting again!

I absolutely love adventures, traveling, the great outdoors, new experiences....  Most of all I love to share it with my kids.  To see their faces light up with excitement is absolute joy to my soul.  Tuesday night was just that.  As shy as my kiddos were they were very excited to get in and try it out!  Gracie is a bit too short still but thankfully she was able to play arcade games with Ashley, James's girlfriend.  She is such a sweetheart and Gracie really likes her.

The next day I was down in bed for most of the day.  It was no surprise.  Having a day with too much excitement will put me out for a while.  Having a day with excitement AND go cart driving....  Well, Let's just say I am thankful I only raced once.  I wasn't prepared for the pain I was going to be in.  I haven't taken a pain pill in a long time....  I had to.  I have gained a new level of pain tolerance....  But not that much!  Two days later it was worse.  Last night I was completely down in bed because of my neck pain.  It still hurts but at least I can sit up now.  I have been on pain pills since and can tell that it is wearing off now.  Yea me!

Well, Yesterday was tough emotionally for me.  I barely could get up to do anything and I was asked to do two things...  ALL DAY.  So as I tried to so the first thing my neck froze.  I still had to pick up the kids from school.  I called my hubby and thankfully he took over.  I can tell you I was a mess.  I don't usually have moments of weakness like that.  I am great at keeping it together and pushing through.  All the advice was great and I knew it all too well.  I just overflowed my bucket and it all came out.  My phone was completely dead...  It wouldn't charge anymore.  So I couldn't call anyone.  Grace finally found the emergency phone so I could call Bryan....  but after that I just decided to let it all go.  I wasn't depressed or sad...  I was SO MAD!!!  I was so tired of being helpless. Sometimes a girl just needs a good cry.  After I exhausted all my strength from the drama I knew I had to pick myself back up and keep going.  Well, I couldn't get up until the next day!!!  So I worked on family history until I passed out.  (I have this new app from Ancestry.com and it's great!!!)

Oh, and my good friend Ammie came over and dropped off some very yummy treats for us.  I now have a great gluten free stash for just me.  OK, I might share....  if there is any left over!!  HA HA!  It was good to talk to her again.  Besides Church and my presidency meetings I really don't socialize much.  It was SERIOUSLY great to talk to her again.  I miss my friends.

Anyhow, they shot a video of our evening...  Check it out!

Pole Position Raceway Las Vegas Helping Family In Need!

Kidney stones

Two stones in two days and two more to go.  Yesterday I passed a kidney stone.  I haven't had one that painful since I was pregnant with Grace.  Pain pills took the edge off.  I slept all last night in between pain peaks. 

Today I woke up sore and while driving to my infusion clinic I felt the pain come back.  I was passing another one.  Since the Drs were not in I skipped my infusion and went to an urgent care. 

I was told there was blood in my urine but no infection...  Thanks to the IV Rocephin.  It confirmed that I did pass a stone yesterday and the x-rays showed I have others to pass, too.  I was advised to go to the hospital.

I went home, and Bryan took me to Centennial Hills Hospital.  I was given heavy pain meds...  It was great to have a break from herxing and pain!  The CAT scan showed I was in the process of passing one on my left and one more on each side are ready to pass as well.  I was given 5 different meds and sent home to call my specialist in the morning to be seen right away.

If you have ever passed a stone you know that once you do it tears you up inside.  Passing a second one was only that much worse because of the already damaged path it has to follow to exit.  On top of that I was herxing.  Not cool.

My urgent care Dr. on Craig...  Tony Garcia, is great.  I saw him last year when I first became sick.  It was nice to talk to him about my progress.  He asked me how soon I would be doing my back surgery now that I am almost off of the IV Rocephin. Of, course once I'm done I will have my polyp surgery and then my back surgery.  Yea me!

2014 will be the year to get me better...  And this too shall pass.

Now for some sleep.

6 weeks in...

Today makes it 6 weeks.  I should be happy.  But I feel horrible...  again.  The last two weeks were so much better!  Then BAM!  Back to how I felt before treatments...  NO, it's even worse.  I'm not even on the Tindamax right now.  This is ridiculous.

Monday I met with the Doctor's PA, Stephanie.  She is great.  I really love her.  We went over test results.  Only one thing changed from the previous week...  My white blood cells are dropping.  I can only be on the Rocephin another week and will have to give my body a break.  I will infuse next Monday and will just maintain my PICC line at home for a week.  Then we can see if I have any flare ups and can decide what path to take next.

I have been trying to put together something for my fundraiser but my brain is not cooperating.  I cannot function and the pain is unreal.  I am trying to focus on breathing while listening to soothing music.  I am not sleeping well again.  My appetite is shot.  I really want to give up or crawl in a hole and give in.  I know I won't...  Just having a moment of weakness.

My kids have been home from school sick.  All of them.  We are having problems in this house and for some reason our family has never been sicker than the 2 years we have lived here.  I think it is either in the air ducts or we have another rodent issue.  It's embarrassing to me to think maybe some of this could have been prevented if I was just well enough to do something about it... or maybe not.  My house is a disaster, the children run wild, (when they're not sick,) and nothing is in order.  It's too much for me right now.

Anyhow, It's taking me too long to type this.  I need to go lay down if I'm going to keep this broth down.  I feel like I'm about to pass a kidney stone again...  Lovely.

PICC line problems

AUGH!!!!!!  My skin irritation is spreading towards the wings of my PICC line.  I have used up a tube of Neosporin in two weeks and a box and a half of gauze pads.  I used so much ointment that it is slowly releasing the clear bandaid and the smaller clipped wing.  WHICH is causing the tube in my arm to pull in and out. 

OUCH!!!!!!!!!!!!!!!!

Good thing I am seeing the Dr in the morning.