My surgery went well. The results came back unexpected but noting that would never resemble cancer so for that I'm grateful! It did show Cholesterol Granulomas and they will more than likely come back. They are usually in the spaces of the inner ear so for mine to be in the maxillary sinus I was a "rare case study" to look up. I'm not looking forward to that again and hope it won't be for many years to come if at all. That was NOT fun. I was on pain pills for a solid 5 days. I took myself off of them and only used them if I couldn't deal any more with the pain. I have refilled my Rx but haven't used any more yet. I almost did today, but I braved it out because I had places to be.
My calling at church is going well... I don't feel I do enough and tomorrow plan to reorganize my next 6 months to prepare for the worst and hope for the best. I need to restart myself... Reading scripture s every day and studying them. My prayers need to increase and so does my temple attendance. I need all the help I can in my calling and I don't mean just spiritual. If it weren't for my amazing presidency, I would be lost. They are my rocks. I can count on each one and they go above and beyond without asking. I used to be upset at myself for not thinking of the things they do, but I have to remember my brain is not what it was since last October. Neither are my cognitive skills, my reaction times and my ability to jump back and answer quickly to questions.
I am anxious for summer and warmer weather. My body aches consistently and my headaches are nonstop. My fatigue levels are high and my sanity is low. It is so difficult to explain the mindset of chronic pain. It can be so "dark" when you are at a higher pain level but knowing that it will pass is really what gets me through. I know for sure it's when I do my most praying.
I am going back to see my Infectious Disease doctor on Wednesday and then we will decide where to go with this round of treatments. My guess is we won't go to a IV at first and will try oral antibiotics with blood work and a bit more testing to make sure I don't have any other secondary infections. I really am hoping to go against the PICC line.... Having to go in EVERY day by myself for 20 minutes, (yes, it could be worse!,) is really annoying especially when the drive is 20-25 minutes one way. I will deal with whatever comes and cannot wait until I am back on track.
This time I did not last long in between treatments because my immune system dropped. We have had employment issues, a death in the family, a pending move based on our landlords status with the home, and my heart and health issues. All of this plus the stress from the holidays and life in general with 4 children has allowed Lyme to take over again.
This time it's different. I know what it is and how to work the "Spoon Theory" into my daily life. I know how to rest and save energy for upcoming days and I know how to plan for recovery days. I also have learned to delegate and always have a back up plan for everything in case I am "out" for the day unexpectedly.
I have lots to do for my fundraising, since I have not lifted a finger since before the holidays. I am going to update my GoFundMe page and eliminate Envita. It will never happen. I believe they are too expensive anyway. I just really liked what they had to offer. So it made me think. I can offer some of that in my own home with a few minor adjustments. The plan for now is to purchase a RIFE machine and hopefully an ozone sauna. Once we buy our own home I can look into an infrared sauna and a few other essentials.
I am excited for February and what I have planned in store. It may not seem like a lot to you, but to me it is. Here is to month 2!!!
I am going back to see my Infectious Disease doctor on Wednesday and then we will decide where to go with this round of treatments. My guess is we won't go to a IV at first and will try oral antibiotics with blood work and a bit more testing to make sure I don't have any other secondary infections. I really am hoping to go against the PICC line.... Having to go in EVERY day by myself for 20 minutes, (yes, it could be worse!,) is really annoying especially when the drive is 20-25 minutes one way. I will deal with whatever comes and cannot wait until I am back on track.
This time I did not last long in between treatments because my immune system dropped. We have had employment issues, a death in the family, a pending move based on our landlords status with the home, and my heart and health issues. All of this plus the stress from the holidays and life in general with 4 children has allowed Lyme to take over again.
This time it's different. I know what it is and how to work the "Spoon Theory" into my daily life. I know how to rest and save energy for upcoming days and I know how to plan for recovery days. I also have learned to delegate and always have a back up plan for everything in case I am "out" for the day unexpectedly.
I have lots to do for my fundraising, since I have not lifted a finger since before the holidays. I am going to update my GoFundMe page and eliminate Envita. It will never happen. I believe they are too expensive anyway. I just really liked what they had to offer. So it made me think. I can offer some of that in my own home with a few minor adjustments. The plan for now is to purchase a RIFE machine and hopefully an ozone sauna. Once we buy our own home I can look into an infrared sauna and a few other essentials.
I am excited for February and what I have planned in store. It may not seem like a lot to you, but to me it is. Here is to month 2!!!
No comments:
Post a Comment