Treatments with Tindamax. *** disclaimer: one icky part of Lyme*****

(What happened to my font??!!)

We have added Tindamax to my Doxycycline and it has increased the die-off of the bacteria.  I've been told that Tindamax helps to break down the biofilm communities that Lyme bacteria live in.  Biofilms are another way Lyme can hide.  Here is why I have a gross disclaimer above...  Skip the next paragraph if you have a sensitive tummy, or don't want to know all the gross parts of Lyme treatments.

**The biofilm communities are being broken down.  I am told that in my feces I should be able to see them.  Yes, that means a lot.  It looks just like the biofilm that would form in a fish tank.  It's that cloudy mass of live bacteria that most bottom feeders love to eat.  In our fish tank ours is tan in color.  Well, for me it's about the same.  Also, Tindamax and doxycycline combined are so much antibiotics for my system to handle that I must take a probiotic to balance it out.  The antibiotics kill all bacteria.  Our bodies need the good bacterial so taking probiotics helps to balance that out.  It's another reason I stay away from sugar.  Sugar feeds bad bacteria.  I don't want that.  Too much bad bacteria and I will be hurting myself and will have horrible diarrhea.  Even with the probiotics I still need another medication to help solidify my stool so I don't get too dehydrated.  So going back to my poo...  Every time I go now, which is about 6ish times a day, (much less frequent than before,) I see the Biofilms.  I'm seeing less the past two days, which I'm not sure if that's good or bad.  But I do know that Lyme morphs and can hide in your cells....  That is another place antibiotics cannot go.  They are safe in there.**

This part of my treatments....  Well, Its tough.  When you feel so sick, pain everywhere and a headache that wax and wanes all day and night, randomly increasing to the point of migraines... It really wears on you.  The pills are doing their job.  They are killing those dang buggers... So for that I am grateful.  It's just the detoxing of their dead bacteria bodies that is hard to deal with.  I don't have the luxury of detoxing the right way and I was horrible today about drinking water.  That doesn't help.  

The past week has been so busy.  One day last week I took my youngest to Deseret Industries to look for plastic doll house pieces for her pony house.  We found a few and and two Barbie's that have the ballet clothes painted on them.  A dollar each!  Score!  We were there for 5 minutes before I regretted leaving the home.  My migraines come and go quick so as soon as one would hit I would wait it out, hoping to not throw up. I was fine.  Gracie dug through the bins and after 10 cents a toy she made out like a bandit!  Cute stuff!

Well, That day I made it home and then my son tells me he needs to get a book at the library.  I could have sent my husband...  It was his day off.  But I wanted some time with him.  It was a rough experience but my son and I were able to talk about a lot of things.  It was a crazy drive home but we enjoyed our time.

Once I returned home my headache was really bad.  It faded later on and I was feeling great by 11 pm.  Which brought me to realize that I hadn't taken my treatment yet!  No wonder why I was feeling well!  Haha!  

On Thursday I woke up to my youngest asking where her pants were.  I rolled over to point to her pile and I was extremely dizzy.  The whole room moved way too quick.  It sent me into an instant ill feeling.  I asked Grace to go get dad.  She did and when he came he put weight on my body with his hands and arms to help me gain my center.  It helped but then my back started cramping.  I was stuck in bed with a horrible motion problem for over 2 hours.  It took a few hours after I got up for everything to stop spinning completely and I'm glad it didn't last for long.  I have had over 4 dizzy spells since... mostly where I feel like I am falling.  So this adds to my already long list of symptoms especially giving reason for my MRI.  I have no idea why getting this test is so hard.  My doctor's office has been told numerous times by myself and Steinberg, to fax over my clinical history and proof of insurance. Tomorrow I will call again.  I know they are annoyed with me but it's my health and I have to stay on top of them.  I learned that a long time ago.

Well, today is SO much better.  I have good days and bad and today was definitely a good day! I had times today where my head pain was too great but I would keep singing, smiling or just say a prayer.  It really helps to pray for many reasons and it does help me to center my response to the pain.  I lasted through the whole 3 hours of church!  Barely, but I did it!  My doctor would tell me to not torture myself, but I love church!  I even subbed for my sons primary class today.  So I got to attend sharing time and sing with the kids!  We did a cool activity where the president was Moses and the kids acted out the parting of the Red Sea. I was one side of the water.  I think I played my role well...  Water is so hard to act out.  

Well, I have a new calling at church.  I'm the assistant to the Relief Society Secretary.  I am glad to be of service again.  Everyone should have a place, big or small.  It helps you to belong.  I really love my church and the gospel that teaches us to have joy.  I am so very thankful that in my times of need that the Lord is there and hears me.  I'm so thankful for so many who have helped with meals, rides, blessings, babysitting, cleaning and most of all hugs, well wishes, prayers and moral support.  It really is what is keeping me going.  That and my kids need a mom that is well!  My husband needs a wife that is well!  My friends and family need help, too!  I am excited to slowly find ways to serve more and more as I get better. 

It's a life long battle and I will never stop fighting it.  I know if it's my time then I would be eventually at peace with it but for now, nothing is gonna brake my stride!  Oh, no!  I've got to keep on movin'!  ;)

Oh, my youngest wants to add her "notes":

(GRACE is 4 years old)

4 = 2+2

2+ 3 = 5

1+1 = 2

9+1 = 10

"Grace loves mom forever and ever to the end.  Bye!"